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Mum who ‘didn’t want to go’ dies from cancer which left her ‘trapped in own body’

A mum who ‘didn’t want to go’ died after ‘fighting brain cancer until her last breath’.

Tricia Scoullar was surrounded by friends and family when she sadly died, with relatives saying she “fought until her last breath” to stay with them.

Daughter Clare has paid tribute to her much-loved mum, reports the Liverpool Echo.

Mum and nan Tricia was just 59 when she suffered a seizure which lead to the discovery and diagnosis of Glioblastoma Multiforme (GBM) – the most aggressive form of cancer that begins with the brain.

Clare, of Woolton, began fund-raising alongside the rest of the family to try and gather money for experimental treatment.

Tricia with her grandson, who is one of her three grandchildren

Since her mum’s seizures and subsequent cancer diagnosis, Clare and the rest of the family devoted much of their time to looking after Tricia and trying to improve her quality of life.

The tumours on Tricia’s brain lead to her having some issues with her speech “a bit like a stutter” and becoming confused when speaking.

But towards the end of her life, Tricia could only say “yes” or “no”.

Clare, 37, and her family fund-raised for experimental treatment in Mexico to try and prolong her life, while improving the quality of her condition too.

But Tricia died on June 18 leaving her entire family grappling with grief.

Clare said: “It’s just heartbreaking – people tell you to prepare for the worst but how can you prepare to lose your mum?

“We got the money for the treatment, we went to Germany – we were meant to be going to Mexico but she couldn’t do the flight.

“It’s 10 hours so it was too much for her so we went to Germany instead.

“Her blood marker was really high, you have a cancer blood marker that tells you how much cancer is in your body and hers was higher than a normal cancer patient’s – it came down a bit when we were in Germany and we were going for walks and getting out and about, then we came home and were on  lockdown.

“We couldn’t do anything but we never gave up hope and she fought until her last breath.”

Tricia and husband Mickey with their granddaughter, Isabella

Tricia battled her cancer for 21 months and was surrounded by close family, including Clare’s brother Paul and their dad, Michael, when she died.

Clare added: “There was about seven or eight of us close family in the room when she died.

“She didn’t want to leave me and our Paul and our dad.

“By the end, she couldn’t talk or walk – she could only say yes or no and even then, she got them confused.

“It’s just heartbreaking, there’s not enough research into Glioblastoma – when you give donations to the likes of Marie Curie, Macmillon or Cancer Research, only 2% goes directly to brain cancer research so you need to donate directly to brain cancer.

“People don’t live 12 months with it but she lived 21 months, she’s done amazing.

“She didn’t want to go, she loved her grand-kids and she was very family orientated and that kept her going.

“But it felt like she was being eaten from the inside and she was trapped in her own body in the end.

“It was absolutely heartbreaking – I think I’m just on autopilot at the moment.”

Clare and her family are planning a funeral, though with a limited number of attendees to comply with government guidance, and have been making banners in “Cadbury purple”, which was Tricia’s favourite colour.

Clare said: “The first day she had the seizure, my entire life changed and the whole family just tried everything.

“We had the charity night on the 1st of February and that’s people who haven’t got anything and they still helped us.

“Or businesses and companies that donated prizes, it was just amazing.”

Clare and her mum’s story touched many people, with strangers reaching out to contact the family to offer their support and condolences.

Clare said: “I put it on Facebook that she had passed and you should see the comments – I haven’t been able to read them all yet because it’s so overwhelming but I’ve gone through and liked them all because I’m not ignorant.

“I’ll read them properly later, when it’s not too much.

“It’s incredible though having strangers messaging me saying how my mum touched their lives – she was loved by so many people.

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“I’m so grateful, I know in my heart that me and my family tried everything for her and she didn’t moan, she just got on with it – she took everything we gave her to try and help her and she didn’t even ask what it was.”

The family are incredibly grateful for the outpouring of support they have received from the people of Liverpool.

She added: “Me, my brother Paul and Michael, our dad, are so grateful and overwhelmed by everyone’s support and kindness.”




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